Pennsylvania-specific Resources for Families
If heart disease is identified or death remains unexplained:
- Children’s Hospital of Philadelphia (CHOP)
- Electrophysiology and Heart Rhythm Program | Children’s Hospital of Philadelphia (chop.edu), 215-590-4040
- Division of Human Genetics, 215-590-2920
- St. Christopher’s
- Heart Center for Children, 215-427-4820
- Clinical Genetics, 215-427-8413
If the child has epilepsy or history of seizures:
- Children’s Hospital of Philadelphia (CHOP)
- Pediatric Epilepsy Program, 215-590-1719
- St. Christopher’s
- Epilepsy Center, 215-427-3878