Utah-specific Resources for Families
If heart disease is identified or death remains unexplained:
- Intermountain Heart Institute Genetic Heart Disease Program
- Adult Cardiovascular Genetic Counseling, 801-507-4600
- Primary Children’s Hospital Cardiology Clinic, 801-213-3599
If the child has epilepsy or history of seizures:
- Primary Children’s Pediatric Neurology Clinic, 801-213-3599
- Genetic counseling:
- Primary Children’s Genetics Clinic, 801-213-3599